Sarcoma Survivor Stories
Stories of Strength
Resilience, and Hope
The Rein In Sarcoma community is filled with stories of strength, courage, and resilience. Survivors remind us that sarcoma is not just a diagnosis — it is a journey of hope, perseverance, and connection. By sharing these stories, we celebrate life and inspire others who are walking a similar path.
Every survivor has a story worth telling. From first diagnosis to treatment and beyond, these journeys offer encouragement and remind us that no one faces sarcoma alone.
Why Stories Matter
Sharing survivor experiences creates:
- Hope for newly diagnosed patients and families.
- Connection within the sarcoma community.
- Awareness for those outside the sarcoma experience, helping them understand and support.
Together, these stories lift up voices that might otherwise go unheard.
Looking Ahead
In the future, we will make it even easier to explore survivor stories by offering filters by age, diagnosis, and other details. This will help patients and families find the experiences that most resonate with their own journeys.
Survivor Stories
Share Your Story
Survivor Stories
Jen Pratt, DO
Osteosarcoma
Location:Leg
Carol West
Desmoid Tumo
Location:Hand
Jenn Andrews
Myxoid sarcoma
Location:Foot
Riley Kane
Rhabdomyosarcoma
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Kim Sobon
Ewing sarcoma
Location:Shoulder
Marisa Cogswell
Synovial sarcoma
Location: Foot
Sarcoma Story – Mary Elizabeth
Leiomyosarcoma
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Sarcoma Story – Dwight Soeffker
Undifferentiated pleomorphic sarcoma
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Sarcoma Story – Yunhui Chae..
Leiomyosarcoma (LMS)
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Tony Toigo
Well Differentiated Liposarcoma
Location:Colon
Matthew Cirelli
Ewing Sarcoma
Location:Back
Conner Dehen
Rhabdomyosarcoma
Location: Tongue
Irene Harper
Follicular Dendritic Cell Sarcoma
Location:Abdomen
Sarcoma Story – Kevin O’Keefe
Synovial Sarcoma
Location:Thigh
Sarcoma Story – Emily Nord
Rhabdomyosarcoma
Location:Arm
Sarcoma Story – Vicki Strong
Leiomyosarcoma
Location:Jaw
Sarcoma Story – Neil Belkin
Location: Leg
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Sarcoma Story – John Roemer
Undifferentiated Pleomorphic Sarcoma
Location:Thigh
Sarcoma Story – Kasey Altman
Alveolar Rhabdomyosarcoma – ARMS
Location: Gluteus
Holiday Concert Benefits RIS
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Ruth B
Malignant Fibrous Histiocytoma (MFH)..)
Location:hand, arm
A Bright Spot for Long Term
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Sarcoma Story – Toni Kittredge
Myxoid Liposarcoma
Location:abdomen
Charlie Gerk
Telangiectatic Osteosarcoma
Location: femur
Annette Bonaventura
Malignant Peripheral Nerve Sheath Tumor
Location:leg, arm
Kraig Kuusinen
Osteogenic Sarcoma
Location: leg, brain
Julie Rose
Rhabdomyo sarcoma
Location: body
Chelsey Olafson
Malignant Peripheral Nerve Sheath Tumors
Location:back
Maggie Cupit-Link
Ewing’s Sarcoma
Location: leg
Mike Schurhamer
Synovial Sarcoma
Location:leg
Blake Hastings
Ewing Sarcoma
Location:foot
Theresa Hosfield
Chondrosarcoma
Location:pelvis, leg
Oliver Carefull
Osteosarcoma
Location:leg
Aaron Conley
Epithelioid Sarcoma
Location: wrist
Kara Dolney
Myxoid Sarcoma
Location:hand
Judy Jones
Spindle Cell Synovial Sarcoma
Location: leg, lung
Bob Laurenzo
Myxoid Liposarcoma
Location: groin
Jan Maudlin
Myxoid Liposarcoma
Location: gluteus maximus
Allan Swartz
Undifferentiated Pleomorphic Sarcoma
Location:thigh
Ken Selden
Mesenchymal Chondrosarcoma
Location:spine
Jean St. Pierre
Epitheliod Sarcoma
Location:hand
Scott Tjaden
Osteosarcoma
Location:knee
Natalie Wolf
Ewing’s Sarcoma
Location:side
Jess Porter
Osteosarcoma
Location:leg
Brad Sauve
Ewing’s Sarcoma
Location: jaw
Heidi Bright
Highly Undifferentiated Endometrial
Location:uterus
Sarcoma Story – Conner O’Brien
Rhabdomyosarcoma
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Sarcoma Story – Peter Brown
Spindle Cell Sarcoma
Location:thigh
Sarcoma Story – Miranda Mead
Ewing Sarcoma
Location:spine
Sarcoma Story – Mel Bassett
Osteosarcoma
Location:Distal Femur
Sarcoma Story – Jim Martin
Liposarcoma
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Ruth Bachman
Malignant Fibrous Histiocytoma (MFH)..
Location:hand, arm
Talia Beck
Ewing’s Sarcoma
Nick Manzoni
Ewing’s sarcoma
Location:calf
Chastity Sabanjo
Leiomyosarcoma
Location:eye
Lynn Von Korff
Undifferentiated Pleomorphic Sarcoma
Location:gluteus maximus
Sarina McNamara Morrison
Undifferentiated Soft Tissue Sarcoma
Location: leg
Grace Nelson
Rhabdomyosarcoma
Location:foot
Sarcoma Survivor: Jody Johnson
Malignant Peripheral Nerve Sheath Tumor
Location: leg
Sarcoma Survivor: Lisa Griebel
Myxofibrosarcoma
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Sarcoma Survivor: Alison Olig
Rhabdomyosarcoma
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Sarah Friedman
Ewing’s Sarcoma
Location:back
Read more
Share Your Story
Share Your Story
If you are a sarcoma survivor, we invite you to share your journey. Whether it’s a moment of strength, a reflection of gratitude, or a message for others, your story has the power to comfort, connect, and inspire.