Earlier this year, U.S. Senators Amy Klobuchar (D-MN) and Roger Wicker (R-MS) and Representatives Gus Bilirakis (R-FL) and Doris Matsui (D-CA), co-chairs of the bipartisan Rare Disease Congressional Caucus, introduced bipartisan, bicameral legislation to increase access to molecular diagnostic testing for rare cancer patients. The Finn Sawyer ACT will provide CMS (Medicare, Medicaid and CHIP)…
Rein in Sarcoma has been so fortunate to have intern Ava Barnett provide support this summer. Ava is a student at St. Olaf majoring in biology and art. She has been a valuable member of our team helping with Party in the Park, Fall Fundraiser: Sunflower Soiree and office administration. Ava shares why she wears…
The big day is just around the corner! Join us on Monday, July 31, 5:00-8:00 pm for Party in the Park back at Como Park in St. Paul, Minnesota. The free event will include community activities, sarcoma resources, inflatables, carousel rides, and much more. We hope to see you there! Registration is required. And if…
Dear Community Members, We are thrilled to announce Joe Osterbauer Lopez as our new Office Manager of Rein in Sarcoma! Joe’s previous work included Medical Administration at PsyBar, Office Manager for an Installer Service, Accounting Assistant at the University of Minnesota as well as duties such as event management, special projects and technology expertise. He…
by Michelle Kolling, End of Life Doula, Grief Coach and Life Coach Making Space for Grief (MSFG), Rein In Sarcoma’s grief support group, is one year old this month! Since July of last year, Making Space for Grief has been a special place for connection, reflection and honoring the healing journey for those learning to…
A record 125 golfers celebrated the seventh annual Sarcoma Cancer Research Golf Classic on June 6th at Edinburgh USA in Brooklyn Park, MN. With the leadership of Rein in Sarcoma champion Tom Boardman, foursomes from across the region and as far away as Ohio enjoyed a beautiful day on a challenging and fun course. They…
Mark your calendar for Rein in Sarcoma’s Sunflower Soiree! This event is our largest fundraiser, raising nearly one-third of our annual operating income. The event will support Rein in Sarcoma’s continued efforts to increase awareness, increase survivors. When: Thursday, October 5, 2023 Where: Nicollet Island Pavilion The night will be filled with inspirational stories and…
Every July the sarcoma community comes together to acknowledge Sarcoma Awareness Month and pay tribute to those impacted by sarcoma, advocate for those living with sarcoma, raise awareness of the red flags, and raise money for sarcoma research. Sarcomas cancers are rare and often aggressive cancers that attack the body’s connective tissues or bones. It is often…