About Rein in Sarcoma
Supporting the SarcomaCommunity
Rein in Sarcoma supports patients and families affected by sarcomas, a rare and often difficult-to-diagnose group of bone and soft tissue cancers that impact people of all ages. Founded in Minnesota in 2001, we have grown into a nationally recognized foundation providing education, resources, and community support. We have invested more than two million dollars in innovative research and educational initiatives at leading medical institutions, including Mayo Clinic, the University of Minnesota, and Children’s Hospitals and Clinics of Minnesota.
Our Mission
Our three-pronged mission: educating the public and medical community about sarcomas, supporting sarcomapatients and their loved ones, and funding research directed toward developing new treatments and finding a curefor sarcoma cancers.
Education
Our education programs raise awareness about sarcoma within the medical community and the general public, helping improve understanding and early recognition.
Support
We are committed to supporting sarcoma patients, survivors, and families. Our year-round events and programs create meaningful opportunities to connect, share experiences, and find community.
Fund Research
We invest in groundbreaking sarcoma research at leading institutions, including Mayo Clinic and the University
of Minnesota, helping advance new treatments and fuel hope for a cure.
Karen Wyckoff,
Rein in Sarcoma founder
Our Story
Rein in Sarcoma was created by Karen Wyckoff in 2001 to raise awareness and fund cures for sarcoma cancers. The event, which is now our Annual Party in the Park, was held at the Cafesjian’s Carousel, located on the grounds of Como Park in St. Paul, MN. Karen died from Synovial Sarcoma a month after the first event was held. Since then, hundreds gather on a Monday evening in July to rein in sarcoma, and to celebrate Karen’s dream of “a world without sarcoma cancers”.
Through our actions we are sewing our own legacy; a legacy that will live on long after we are gone. No one can take away the memories and love that a person has left behind.
-Karen Wyckoff,
Rein in Sarcoma founder
Our Team
Mitch Atherton
treasurer@reininsarcoma.org
Brendan Dillon
John Charlson, MD
Andrea Espejo-Freire, MD
Maureen Anderson
Laura Gagne
Blake Hastings
David Largaespada, PhD
Scott Okuno, MD
Jason Patalonis
Stephanie Terezakis, MD
Emeritus Board Members
Amanda Parkes, MD
University of Minnesota
L. Chinsoo Cho, MD, MS
Kathryn Dusenbery, MD
Jutta Ellerman, MD
Emily Greengard, MD
Christian Ogilvie, MD
Stephanie Terezakis, MD
Mayo Clinic – Minnesota
Scott H. Okuno, MD
Steven I. Robinson, MBBS
Mayo Clinic – Arizona
Safia Ahmed, MD
Children’s Minnesota
Julie Chu, MD
Regions Hospitals – HealthPartners
Randy Hurley, MD
Financial Information
Rein in Sarcoma is a 501(c)(3) nonprofit organization supported by a small professional staff and a dedicated
community of volunteers. Our Board of Directors serves entirely without compensation and upholds strong
governance practices to ensure integrity and transparency. To safeguard the mission of RIS, the Board follows a
“Conflict of Interest and Discharge of Duties” policy. If you’d like a copy of this policy, please reach out via
Rein in Sarcoma Annual Reports
2020 Annual Report
2019 Annual Report
2018 Annual Report
2017 Annual Report
2016 Annual Report
2015 Annual Report
Rein in Sarcoma 990 Forms
RIS-2023-990-form
RIS-2022-990-form
RIS-2021-990-form
RIS-2020-990-form
RIS-2019-990-form
RIS-2018-990-from
RIS-2017-990-from
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