Here to Support You While You Support Your Loved Ones
Caring for someone with sarcoma is an incredible act of love. It can also bring up a mix of emotions, questions, and new responsibilities. Whether you are helping a loved one through treatment or offering ongoing support as they recover, Rein in Sarcoma is here to help you feel supported, informed, and connected.
Connect With Other Caregivers
Having someone to talk to who understands what you’re going through can make a big difference. Whether
you are a partner, parent, sibling, or friend, you are welcome in our caregiver support spaces
Join Our Facebook Community
This private group offers a place to ask questions, talk through concerns, and get support from other caregivers
who know what the day-to-day looks like.
Attend Events
Rein in Sarcoma hosts events throughout the year that bring patients, families and caregivers together for
support, learning, and community. Meeting others who share your experience can offer comfort and a renewed sense
of strength.
Patient Resources and Tools
Our resources are designed to help you navigate your loved ones diagnosis and treatment with confidence. We
focus on providing clear, trustworthy information and practical tools that support you from day one.
Research that Brings Hope
Rein in Sarcoma supports research that leads to better understanding, earlier detection, and improved
treatment options for patients. Every study we help fund moves us closer to more effective therapies and, one day, a
cure.
Interested in Giving Back?
Our Patient and Family Support Committee welcomes caregivers who want to help others going through a
similar experience. Many of our volunteers have supported loved ones through sarcoma and are passionate about
making things easier for the next family.
You can be part of shaping programs, offering peer support, or helping us create better tools for families.
Rein in Sarcoma Patient Guidebook
The RIS Sarcoma Patient Guidebook is a comprehensive, easy-to-understand resource for patients and their families.
Questions to Ask Your Doctor
This resource was created by sarcoma survivors to help you and your loved one facilitate discussion with medical professionals. This is a valuable resource for patients and caregivers. Print to take to your appointments.
For Patients Facing Amputation
Dr. Edward Cheng of the University of Minnesota, presents moving stories of young people’s nervousness, courage, and optimism before and after amputation surgery in the treatment of bone sarcoma cancer.
Clinical Research Trials
Read about some cancer centers that often list the clinical trials being conducted.
Sarcoma Support Directory
Find support groups and organizations for patients and families going through sarcoma.
Wellness and Mental Health Resources
Resources to help you manage stress and anxiety, and enhance overall wellbeing.
Financial, Legal, and Other Assistance
Find organizations and institutions that provide assistance for families and individuals facing financial, legal, and other hurdles due to cancer.
Wish Fulfillment Organizations
Organizations that provide chronically or seriously ill children and adults the opportunity to have a dream come true.