
Stories From Sarcoma Patients & Survivors
At Rein In Sarcoma, every story shows the power of community, compassion, and hope. From patients and survivors to caregivers, donors, and researchers, these stories reveal how each gift, each hour volunteered, and each voice raised makes a difference.
The Ripple Effect Of Giving
Donations and support do more than fund research—they touch lives. They bring comfort to families, create resources for patients, and empower researchers to push for breakthroughs. Every contribution creates a ripple of hope that spreads across the sarcoma community.
Stories That Inspire
- Patients and Survivors share their journeys of courage and resilience.
- Caregivers and Families reflect on the love and strength that carried them through.
- Donors explain why they give, and the impact it brings.
- Researchers show how funding translates into real progress.
Together, these voices tell the full story of Rein In Sarcoma’s mission in action.
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Riley Kane
Rhabdomyosarcoma
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Sarcoma Story – Mary Elizabeth Spetzman
Leiomyosarcoma
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Sarcoma Story – Dwight Soeffker
Undifferentiated pleomorphic sarcoma (soft tissue sarcoma)
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Sarcoma Story – Yunhui Chae-Banks
Leiomyosarcoma (LMS)
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Sarcoma Story – Neil Belkin
Location: Leg
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Ruth B
Malignant Fibrous Histiocytoma (MFH) aka Undifferentiated Pleomorphic Sarcoma (UPS)
Location:hand, arm
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Sarcoma Story – Conner O’Brien
Rhabdomyosarcoma
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Sarcoma Story – Jim Martin
Liposarcoma
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Ruth Bachman
Malignant Fibrous Histiocytoma (MFH) aka Undifferentiated Pleomorphic Sarcoma (UPS)
Location:hand, arm
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Talia Beck
Ewing's Sarcoma
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Sarcoma Survivor: Jody Johnson
Malignant Peripheral Nerve Sheath Tumor (Neurofibrosarcoma)
Location: leg
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Sarcoma Survivor: Lisa Griebel
Myxofibrosarcoma
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Sarcoma Survivor: Alison Olig
Rhabdomyosarcoma
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Brad Kompelien
Osteosarcoma
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Share A Sarcoma Story
Your story matters. Whether you’ve faced sarcoma directly, supported a loved one, or contributed through giving or research, your experience can inspire others. Sharing your story helps build understanding, connection, and hope within the community.
Sarcoma Story Guidelines
Describe an aspect of what you have experienced or learned during your sarcoma journey as a patient, survivor or loved one of someone who has/had sarcoma. Some prompts to help craft your story:

What was the most unexpected/surprising aspect of treatment?

What was your most frustrating moment or experience?

Were there any gestures of kindness that you will remember?

Having been through what you have, and knowing what you know now- If you could go back in time and tell yourself one thing, what would it be?

Are there any myths about cancer or treatment that you wish to dispel?
Ideal story length is 350 – 450 words
Include one or two photos of the sarcoma patient/survivor. It works best to attach a jpeg format of the photo(s) to your email.
We highly appreciate the following as we’ve found newly diagnosed patients are very interested in reading stories of people with similar diagnosis.

Type of Sarcoma

Year of Diagnosis

Area of body affected
Sarcoma Stories FAQs
Sometimes the diagnosis of cancer comes quickly, if a person has obvious symptoms and received prompt evaluation. However, diagnosing a new sarcoma can sometimes be challenging. Some reasons include:

Will Rein in Sarcoma edit my story?
Do you accept stories in formats other than written?

If you would prefer to be interviewed and have one of our volunteers write the story, send us an email at marketing@reininsarcoma.org. If you would be willing to have your story in video, let us know — we can arrange filming in the Twin Cities.
Can I request to have a story removed from your website?

Yes, you can request to have it removed at any time. Please email us at marketing@reininsarcoma.org to have it removed.
Ready To Share Your Story?
Your story matters. Whether you’ve faced sarcoma directly, supported a loved one, or contributed through giving or research, your experience can inspire others. Sharing your story helps build understanding, connection, and hope within the community.

